Tuesday, 17 January 2017

JANUARY 2017: 40 years of Cystic Fibrosis Awareness

On 15 October 1977 my older brother, Paul, then aged 6 years old, sadly passed away after being overpowered by the deadly genetic disorder, Cystic Fibrosis (CF).

On 24 August 1979 I was born with a much milder strain of CF compared to what Paul had.

Today would've been his 46th birthday and this October will be 40 years since my parents lost their first son and on 24 August 2019 time will be my 40th birthday.

As a way to say thanks to the care us CFers receive, I, with your help, would like to raise funds for the Manchester Adult CF Centre at Wythenshawe Hospital as had it not been for their efforts and help with the care of myself and others with CF, I don't know where we'd be right now.

The money raised will go towards equipment needed to help improve the quality of life of patients who endure CF and stay as inpatients for what can be days, weeks or sometimes months whilst being treated for their illness. Some of whom like my brother sadly spend their last moments there.

So please, dip your hands in your pockets, purses, wallets and back of sofas, and donate what you can no matter how big or small, and make my 40th something special to remember.

To donate your gift, please visit Manchester Adult Cystic Fibrosis Centre and mark your donation with "Peter Trengove".

Sunday, 1 January 2017

January blog special...

Later on this month I will be posting a special blog I hope will raise awareness of Cystic Fibrosis on a different level in relation to an upcoming anniversary.

Watch this space for details.

Cystic Fibrosis & Fitness: Part 6

Last October I took part in the study, "Gastro-oesphageal reflux in patients with cystic fibrosis and its effect on lung function".

The outcome of this is I was diagnosed with GORD (Heartburn and gastro-oesophageal reflux disease).

From doing further reading into what GORD is, I found treatment is fairly easy as it mainly involves small life changes.

The following is extracted from the GORD information link.

"You may find the following measures can help reduce heartburn and other symptoms of GORD:
  • Eat smaller and more frequent meals, rather than three large meals a day – don't eat or drink alcohol within three or four hours before going to bed, and avoid having your largest meal of the day in the evening.
  • Avoid anything you think triggers your symptoms – common triggers include coffee, chocolate, tomatoes, alcohol, and fatty or spicy food.
  • Don't wear tight clothing – clothes that are tight around your tummy may make your symptoms worse.
  • Raise the head of your bed by up to 20cm (8 inches) – placing a piece of wood or blocks underneath one end of your bed may reduce symptoms at night; don't just use extra pillows, as this can put a strain on your tummy.
  • Try to relax – stress can make heartburn and GORD worse, so learning relaxation techniques may help if you're often feeling stressed.
  • Maintain a healthy weight – if you're overweight, losing weight may help reduce your symptoms.
  • Stop smoking – smoke can irritate your digestive system and may make your symptoms worse.
If you're taking medication for other health conditions, check with your GP to find out whether they could be contributing to your symptoms.

Different medicines may be available, but don't stop taking any prescribed medication without consulting your GP first."

From looking at this, the action I need to take is eat smaller and more frequent meals. So this is my new years resolution to avoid the complications of GORD.